Baby Silas Richard Rodriguez
Your Support Could Save A Life
Nino's Story
Michele Coia-Veston
"My son became very ill overnight with a fatal and incurable disease called Giant Cell Myocarditis. As he underwent multiple open heart surgeries and transplant, Muran provided both my son and my family with emotional support and information on the "journey and complications" of what was to become my 21 year old son's life. My son experienced both severe rejection and the return of the disease requiring chemotherapy and many other procedures, Muran remained a constant support visiting and calling regularly. When my son passed away. Muran came to mourn with us. He has remained in my heart. I have tremendous respect and affection for this incredable young man and his passion to help others. The world is a better place because of this young man."
Tips from Glayd's Ramos
*Learn to ask and accept help from others. I know it can be tough especially since we are use to depending on ourselves for the simplest tasks, but it's a must. This will make it easier on you. The more energy you conserve, the better your body will feel. 
*No negativity around you whatsoever. 
Get rid of all the stress and drama in your life.  Keep it/those away from you the best you can. Stress brings us down and is bad for our health. Only keep the loving, supporting, and positive people around you. 
*Always keep your head up high.  Never allow people to look down on you except to help you rise up, physically, emotionally,  and spiritually. I used to be in a wheelchair and would never look up or straight at people for fear of their reactions/looks, until my husband told me that I was an individual just like everyone else. Nobody was better than me and that everybody was going through something at one time or another whether we can see it or not. He was right. From that day forward, I kept my head up and remained positive always.
*If you struggle with Raynaud's like most of us with scleroderma,  make sure you carry around with you some gloves to keep your hands warm in cold environments like the doctor's office. A small pillow/cushion isn't a bad idea for sitting on. Doctor appointments can be long and sitting for long periods at a time would hurt my bottom. 
*To feel more independent, try wearing shoes that don't require laces. Wear comfortable clothes that slip on. Avoid everything with buttons or zippers. Those are hard on ourselves. 
*Exercise is very important. A few steps here and there, leg raises while sitting on a chair, stretching out your arms, are just some examples. Meditation is also great for stress. As well as yoga, just keep it simple and don't over do it. Water exercise,  I found to be best. It's easy on our joints and muscles. Just don't lay around feeling sorry for yourself. Keep active. 
*Love yourself and take care of yourself first. You matter. 
My prayers and well wishes to you, Gladys.
People can visit   for more tips and information on scleroderma.
There are also many facebook pages like "Scleroderma Strong" or "Life with scleroderma" they can follow for support. 
Also  is great as Chanel speaks about her daily life with scleroderma